CCHS Network Announces 2026 Research Grant Opportunity for Scientists Studying Congenital Central Hypoventilation Syndrome

The Congenital Central Hypoventilation Syndrome Network (CCHS Network) has officially opened applications for its 2026 CCHS Research Grant Award, inviting scientists and clinicians to submit proposals that can improve the understanding, treatment, and care of people living with Congenital Central Hypoventilation Syndrome. The organization expects to fund two to four research projects, with grants ranging from $50,000 to $100,000 for one year, supporting innovative work that can make a real difference for patients and families affected by this rare condition.

Funding Details

The 2026 grant cycle will support research projects across several areas, including basic science, clinical studies, translational research, technology development, and epidemiology related to CCHS. Funding can be used for research supplies, equipment, manuscript publication costs, conference travel to present results, and other project-related expenses.

Projects that explore the biology of respiratory control, potential treatments, and the long-term life stages of individuals with CCHS will receive special attention during the review process. The program also welcomes researchers who are new to the CCHS field, especially those bringing fresh ideas from related areas of medical or scientific research.

Who Can Apply

Applicants must hold a doctoral degree (Ph.D., M.D., or equivalent) and have a faculty appointment or similar institutional support, such as laboratory space or clinical research resources. Eligible investigators may request funding between $50,000 and $100,000.

To help bring early-career researchers into CCHS research, the program also offers grants of up to $50,000 for junior faculty, post-doctoral fellows, and medical residents. These applications must include a mentoring team and a strong institutional support letter.

Research Priorities

The CCHS Network encourages projects that can move the field forward in meaningful ways. Strong proposals may focus on:

• Understanding the central and peripheral respiratory control systems involved in CCHS

• Turning basic science discoveries into new treatment approaches

• Studying real-world healthcare improvements that improve quality of life for patients and families

Researchers working on clinical or translational projects are encouraged to consult with the CCHS Network during proposal development.

Review Process

Applications will be evaluated by the CCHS Grant Advisory Panel, a group that includes experienced researchers, physicians specializing in respiratory and neurological disorders, and family members of patients who also have medical or scientific backgrounds.

Each application will be reviewed based on four key factors:

• Significance: The potential impact of the research on understanding or treating CCHS

• Investigator Expertise: The skills and experience of the research team

• Approach: The quality and feasibility of the research design and methods

• Institutional Support: The resources and environment available to complete the project

Key Dates

• Application Deadline: June 30, 2026

• Funding Decision Announcement: October 1, 2026

• Expected Grant Start Date: January 1, 2027

Application Requirements

Applicants must submit a complete proposal that includes the project title, abstract, research strategy, references, budget with justification, and institutional details. The research strategy section is limited to five pages and must cover specific aims, significance, and the planned research approach.

Completed applications should be sent via email to [email protected].

Why This Grant Matters

Congenital Central Hypoventilation Syndrome is a rare but serious condition that affects the body’s ability to control breathing, especially during sleep. Research funding like the CCHS Network Grant Award plays an important role in advancing medical knowledge, supporting new treatment ideas, and improving the daily lives of patients and families living with the disorder.

Scientists interested in contributing to progress in rare disease research now have an opportunity to develop innovative projects with direct impact on the CCHS community.

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